Impact

/ / OUR IMPACT | 2023 - 2026

Bringing help and hope to persons with dementia and their family caregivers

Dementia is not only a medical condition. It reshapes memory, relationships, independence, livelihoods — the everyday lives of entire families.

Since 2023, Dementia India Alliance (DIA) has been connecting people, organizations, health systems and governments to make dementia recognition, diagnosis, care and support more accessible across India.

No single intervention can do this alone. So we work across five connected pillars, at the same time.

Here's the impact we have made at a glance -

Awareness

1,08,000+ people sensitized through awareness programs and campaigns

Screening

17,746 cognitive assessments to identify concerns and enable timely referral

226 old age homes screened nationwide under the MoSJE partnership

Training

9,228 people trained in dementia care

364 master trainers developed to multiply dementia-care capacity

Support

1,998 family caregivers supported through dedicated support groups

1,092 calls answered through the DIA Dementia Helpline

Advocacy

3 government MoUs supporting dementia and healthy-ageing initiatives

5 policy roundtables bringing evidence and stakeholders together

3 policy documents developed and released

3 DemCon conferences bringing the dementia community together

One mission. Five simultaneous fronts.

Dementia care breaks down when any one part of the system is missing.
• Awareness without access to care is not enough.
• Screening without referral is not enough.
• Diagnosis without support leaves families struggling.
• Training without systems limits scale.
• Policy without implementation does not change everyday lives.

DIA was created to work across all five fronts — simultaneously.

AWARENESS

Making dementia visible before it becomes a crisis

For many families, it starts with uncertainty. Memory changes are brushed off as ageing. Behaviour changes are misunderstood. Nobody knows where to turn. We work so people recognize concerns earlier, seek help sooner, and know that support exists.

1,08,000+

people sensitized through awareness programs and campaigns

Taking dementia into the community: Communities and local organizations · Senior citizen groups · Resident welfare associations · Educational institutions · Healthcare professionals · Care organizations and old age homes · Government and community systems
World Alzheimer's Day. Annual public workshops on dementia awareness and risk reduction.
The Blue Button Movement. A simple, visible way for caregivers and families to signal that they may need understanding or support.
Key locations: • Karnataka • Tamil Nadu • Puducherry • Andhra Pradesh • Kerala • Delhi • Maharashtra • Telengana • Orrisa

SCREENING

Catching concerns early, where families actually are

Early recognition helps people and families reach assessment, understand what may be happening and explore care and support. We take screening closer to communities, rather than relying only on specialist centres. We take the screening to senior citizen communities, apartments, churches, clubs and door to door.

17,746

cognitive assessments conducted to identify concerns and enable timely referral

226 old age homes screened nationwide under the MoSJE partnership

A DIA Screening on Dementia in a Rural Place

Where older people live. Through our partnership with the Ministry of Social Justice and Empowerment (MoSJE), we have supported dementia screening across old age homes, and strengthened care-home staff's ability to recognise dementia and respond to residents living with cognitive impairment.
Where communities gather. With the Rural Development and Panchayat Raj Department (RDPR), Karnataka, elderly screening is being integrated into Digital Libraries in Gram Panchayats, bringing healthy ageing, dementia awareness and early recognition closer to home.

SCREENING IS DONE BOTH ONLINE AND OFFLINE.

TRAINING

Building the workforce India needs for dementia care

India needs many more people equipped to understand and respond to dementia. We invest in people, and in trainers who take knowledge further.

9,228

people trained in dementia care

364 master trainers developed to multiply dementia-care capacity

Who we train: Healthcare professionals · Community workers · Volunteers · Caregivers and care staff · Professionals working with older people · Organisations and institutions
DemLearn. Our Training-of-Trainers programme, builds a sustainable pool of people who carry dementia knowledge into their own organisations, communities and networks. Better care starts with better training.
What we teach: Understanding dementia · Early recognition and screening · Communication and person-centred care · Behavioural and psychological symptoms · Activities of daily living · Caregiver support · Advance care planning · Palliative care · Dementia-friendly care · Risk reduction and brain health

NOT JUST MORE KNOWLEDGE. BETTER CARE.

SUPPORT

Standing with families after diagnosis

A diagnosis is not the end of the journey. For families, it can be the start of a long period of uncertainty, adaptation and caregiving. We make sure they have information, practical guidance and support that continues.

3000+

family caregivers supported through dedicated support groups and through the National Dementia Support Line

Support groups. A space for caregivers to learn, share experiences, ask questions and know they are not alone.
DIA Dementia Helpline. An accessible first point of contact for information and guidance.
DemSupport with NIMHANS. Structured post-diagnostic support for families: counselling, care planning, non-medical interventions, caregiver support, legal and welfare guidance, and financial assistance for family caregivers.

From “What is happening?” to “What can we do now?” — and towards “How can we live well, with the support we need?”

ADVOCACY

Turning evidence into systems and policy

India's dementia response cannot rest on individual organizations or specialist centers. Dementia must be recognized within health systems, social care, healthy-ageing programs and public policy. We work with governments, institutions, professionals and civil society to build that response.

4 states

where DIA has led dementia policy consultations: Karnataka · Tamil Nadu · Andhra Pradesh · Puducherry

3 DemCon conferences (2024, 2025, 2026), with 1,000+ delegates each year

State consultations bring together government representatives, healthcare professionals, civil society organisations and other stakeholders to identify practical pathways for strengthening dementia care.
DemCon is a platform for evidence and research, clinical learning, policy dialogue, caregiver perspectives, innovation, cross-sector collaboration and international knowledge exchange.

Following the National Consultative Meeting on Dementia Strategy in Delhi, DIA authored an Integrated National Dementia Plan and formally submitted it to the MoSJE, MoHFW and Niti Ayog

Dementia cannot sit within one department, one programme or one institution.

An effective response needs health, social care, ageing, disability, mental health, community systems and family support to work together. Our policy work is about more than raising awareness. It is about building the systems needed to respond.

BUILDING PARTNERSHIPS THAT LAST

We believe impact is collective

The scale of dementia in India demands collaboration. DIA brings together the organizations, expertise and systems that can create greater impact together.

> Governments: To integrate dementia into public systems, policies and programs.
> Healthcare and academic institutions: To strengthen clinical care, research, education and evidence.
> Civil society organizations To extend community reach and develop locally relevant solutions.
> Care organizations: To improve dementia care in homes and residential settings.
> Philanthropic partners: To support innovation, implementation and scale.
> Communities and families: Because sustainable dementia care must be built around the people who live it every day.

What three years of action have built:

Greater visibility: More people are talking about dementia and seeking information.
Greater reach: Screening, awareness, training and support are moving closer to communities.
Greater capacity: Thousands trained, and a growing network of master trainers.
Greater support for families: Support groups, a helpline and structured post-diagnostic support.
Stronger partnerships: Governments, institutions, organisations and communities working together.
A stronger policy voice: Dementia is increasingly part of the conversation on health, ageing, care and public policy.

BUT THIS IS ONLY THE BEGINNING
Millions of lives are still waiting for support.

Three years have shown what is possible when awareness, screening, training, support and advocacy move together. But India's dementia challenge is far larger than any one organization. The next phase is about moving from action to acceleration.

With Gratitude

None of this is possible alone. We are grateful to our philanthropic partners, institutional collaborators, government partners, healthcare and academic institutions, civil society organizations, volunteers, professionals, caregivers and families who make this work possible.

Tata Trusts · Mazumdar Shaw Philanthropy · United Way of Mumbai · 70+ partner organizations across India

And to every person who has given time, knowledge, resources, compassion or lived experience to build a stronger dementia movement in India.

The work continues. Join us in building a dementia-friendly India.

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